by Preda A

You have your own health history. Talk with your doctor about your risk factors and background with narcolepsy. By talking openly and often with your doctor, you can take an active role in your care.

Tips for Getting Information

Here are some tips that will make it easier for you to talk to your doctor:

  • Bring someone with you. It helps to have another person hear what is said and think of questions to ask. They may also be able to provide more details to the doctor.
  • Write down your questions so do you do not forget them.
  • Write down the answers you get and make sure you understand what you are hearing. Ask for help if you need it.
  • Do not be afraid to ask your questions or ask where you can find more information. You have a right to know.
  • Think about keeping a diary of your symptoms, triggers, and a list of your medicines. Share this with your doctor at every visit.

Questions to Ask Your Doctor

About Narcolepsy
  • Are my symptoms caused by narcolepsy?
  • What are other symptoms of narcolepsy?
  • Can I pass it on to my children?
About Treatment Options
  • Which medicines will I need to take?
  • What are the benefits/side effects?
  • Will these medicines interact with the other medicines, over the counter products, dietary, or herbal supplements that I already take?
  • How long can I safely take these medicines?
  • Will I need to have any lab tests while I am taking these medicines?
  • Are there any alternative treatments that might be helpful?
  • Can people who are pregnant or breastfeeding take these medicines?
About Lifestyle Changes
  • Is it still safe for me to drive?
  • Are there lifestyle changes that can help?
  • Are there any activities that I should avoid?
  • How can I keep myself and others safe if I have a sudden episode?
  • Should I avoid drinking alcohol?
About Your Outlook
  • Are there support groups in my area?
  • Will my symptoms stay the same, get worse, or get better over time?


Getting the most out of your doctor appointment. Family Doctor—American Academy of Family Physicians website. Available at: Accessed April 25, 2022.

Narcolepsy. EBSCO DynaMed website. Available at: Accessed April 25, 2022.

Narcolepsy. National Heart, Lung, and Blood Institute. National Institutes of Health website. Available at: Accessed April 26, 2022.

Narcolepsy fact sheet. National Institute of Neurological Disorders and Stroke website. Available at: Accessed April 25, 2022.

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