RESOURCES
Address: 4301 Connecticut Avenue, NW, Suite 404 Washington, DC 20008
Phone: 1-202-966-5557
Internet address: http://www.geneticalliance.org
Description of services provided: The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.
RESOURCES
Address: PO Box 861 Mendenhall, PA 19357
Phone: 1-888-999-9428
Internet address: http://www.genetic.org
Description of services provided: This website provides support services, a newsletter, and information about sex chromosome variations.
RESOURCES
Address: 1275 Mamaroneck Avenue White Plains, NY 10605
Internet address: http://www.marchofdimes.org
Description of services provided: The March of Dimes provides information on pregnancy and birth defects and gives referrals.
RESOURCES
Address: 8 East 41st Street, 8th floor New York NY, 10017
Phone: 1-800-221-4602
Internet address: http://www.ndss.org
Description of services provided: The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.
RESOURCES
Address: 330 North Wabash Avenue, Suite 2000 Chicago, IL 60611
Phone: 1-312-321-6834
Internet address: http://www.nsgc.org
Description of services provided: On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.
RESOURCES
Address: 2982 South Union St. Rochester NY, 14624
Phone: 1-800-716-7638
Internet address: http://www.trisomy.org
Description of services provided: This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.
RESOURCES
Address: 11250 West Road, Suite G Houston TX, 77065
Phone: 1-800-365-9944
Internet address: http://www.turnersyndrome.org
Description of services provided: The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.
RESOURCES
Address: P.O. Box 268 Lakewood CA, 90714
Phone: 1-888-970-0777
Internet address: http://www.fivepminus.org
Description of services provided: This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.
Revision Information
- Reviewer: EBSCO Medical Review BoardMichael Woods, MD, FAAP
- Review Date: 11/2018
- Update Date: 11/06/2018